On the Move After Spinal Cord Injury
Each year, nearly 11,000 people experience spinal cord
injuries (SCI) in the United States. PM&R physicians direct the highly
specialized care of these individuals and their needs.
PM&R physicians coordinate a multidisciplinary team
of health care professionals who help individuals with SCI return to
independent living. Advances are continually made. Fifty years ago, people
with SCI lived only about two years. Now they can expect close to an average
life expectancy.
Christopher Reeve and other high profile SCI survivors
have done much to raise awareness of living with SCI. But as PM&R
physicians see every day, you don't have to be a superhero or a celebrity to
meet the challenges of spinal cord injury. Here are just two examples.
Cheryl Angelelli
In 1983, 14-year-old Cheryl Angelelli was practicing a
new dive with her YMCA swim team. She hit the bottom of the pool and sustained
a spinal cord injury that left her paralyzed from the waist down with limited
use of her hands and legs. She spent five months at the Rehabilitation
Institute of Michigan (RIM) in Detroit where the staff treated not only the
physical rehabilitation of her spinal cord injury, but helped her relearn
everyday activities such as feeding herself, brushing her teeth, and getting
dressed.
Angelelli found herself quickly back in the pool.
"The pool was always a part of my therapy," she says, and she
believes the staff may have encouraged her to quickly return to the water to
prevent a future fear of it.
Fast forward to 1996, Angelelli traveled to Atlanta
as a freelance writer assigned to cover the Paralympic games. Watching
athletes competing with disabilities, especially the swimmers, she was
inspired. "It was an amazing experience," she says. "I turned
to my friend and said, ‘In four years, I want to be able to do this.' "
Angelelli came home to Roseville, Michigan, found a
coach and got back into the pool after 14 years. Her absence from the swimming
scene wasn't due to a lack of ambition. "I was just too busy with other
things," she says. Among them, returning to high school, continuing to
college, and earning a bachelor's degree in communications from Oakland
University.
After two years of training and hard work, Angelelli was
competing in New Zealand at the 1998 World Championships for Swimmers with
Disabilities as part of the US team.
And now she'll realize her goal.
In October of 2000, Angelelli traveled to Sydney,
Australia, to represent the United States as part of the 29-member US
Paralympic Swim Team. During the Paralympic trials in Indianapolis
earlier that year, Cheryl did more than just qualify for five events. She became the
new national champion in the 100 meter freestyle and set an American record in
the 100 meter breaststroke. She is ranked among the top five swimmers in the
world.
To get there, Angelelli worked full time and trained
full time. She swims five days a week after work and spends a sixth day in the
gym. "It's like my second job," she laughs.
This former patient of the Rehabilitation Institute of
Michigan, is now its manager of marketing and public relations. "I love
the people here, and I love what we do here. We really help people rebuild
their lives." With her own personal experience in mind, she says,
"When I see a patient come through the doors I know they won't be the
same person when they leave." And RIM's support of her athletic endeavors
should really not be that surprising Angelelli says, because "I'm living
their mission."
Angelelli's accomplishments have a lot to do with her
positive attitude about living with a spinal cord injury. "It's not a
terrible life. The only real limitations I have are the ones I place on
myself."
Tom Haig
In September of 1996, Tom Haig hopped on his bicycle to
go to a local sports bar to watch a Green Bay Packers game. A former
professional diver who spent four years bicycling in the French Alps, Haig
biked over 100 miles a week in his new home of Portland. Ironically, it wasn't
a risky dive or biking around a mountain curve that put him in danger. It was
a car blowing through a stop sign on that sunny day that knocked him off his
bike and under a truck. A bike helmet and a Packer "cheesehead"
saved his head and neck. "My legs, however, were toast," says Haig.
"As a former professional athlete, most of my
confidence and self esteem lay in a motionless heap below my pelvis. It's not
the kind of game you can win by yourself. Spinal cord injury is a team sport
and the only path to victory is to have a dedicated, tireless team on your
side."
Haig received tremendous support from his family and
friends. Among his biggest supporters is his brother, Andrew Haig, MD, a
PM&R physician. Dr. Haig knew the importance of getting his brother
immediate rehabilitation for his spinal cord injury.
After three months of inpatient rehabilitation, Haig
gradually resumed his active life. He adds, "It's you versus your new
body. Your new body makes and changes the rules without notice." He
returned to the French Alps and rode his old bike routes using a hand cycle,
he visited a friend in Italy, and spent two weeks in the Middle East.
Re-hired by his old employer Adidas America as a
corporate writer, he covered the 1998 World Cup in France and last year's
women's World Cup. The company also supported his training for the Boston
Marathon, which he completed in 1998.
And Haig shows no sign of slowing down. "Challenge
Oregon Adaptive Ski Program has me on a mono-ski taking on the blue runs of
Oregon's Mt. Bachelor. As you read this, I'll be in India doing Web production
for the Dalai Lama in India. With all the challenges that my team has faced
and won, I feel it is my duty to press on and prove that their efforts have
not been in vain. No matter what I accomplish, it can only reflect a sliver of
the love and support I've received."
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