A registry is a collection of records or lists of information maintained in an ordered fashion to allow efficient access to that information – similar to a database.
AAPM&R's Registry is a physiatry-owned, single repository of data which will harness the combined power in numbers of the entire specialty. This mass of data can then aid the specialty by guiding efforts to reduce burnout and defend our scope of practice.
Not only does AAPM&R's Registry provide the data to demonstrate your value, it provides data to improve your care by tracking your success on a national scale and studying the most effective treatments for your patients. As more data is collected, the specialty will become stronger, together.
You can participate directly from your office! From the moment a patient calls to make an appointment to the time they transition from your care, there is a story being told about your clinical care. It starts with the patient’s information being documented, and grows over time with more details, new findings, and patient satisfaction scores. Each time a patient sees their provider, data is recorded in their electronic health record (EHR), which is then reported to the Registry. Key information from the provider’s EHR is sent in a secure and encrypted fashion to the Registry for analysis.
Decision-making is no longer fueled by anecdotes or the benefit of the doubt. Decision-making demands data – factual evidence that your skills and services are deserving of a patient’s patronage, an institution’s referral, or a payor’s reimbursement.
You need quantifiable proof of your value.
You can’t gather that proof on your own and the data an institution collects will not sufficiently focus on or benefit physiatry. The accurate documentation of PM&R through data is an effort that will involve all of physiatry, together, and it starts with AAPM&R’s Registry.
AAPM&R’s Registry is essential for the specialty and its future as it aligns with the shift to a value-based health care system. By serving as a physiatry-owned, single depository of data, the Registry will harness the combined power in numbers of the entire specialty. This mass of data can then aid the specialty by guiding efforts to reduce burnout and defend our scope of practice.
The strategic planning and development of the Registry is overseen by AAPM&R staff and physiatrist-led steering committee.
- Michael Hatzakis, Jr., MD, (Chair)
- Joseph Hornyak, MD, PhD
- Amy Houtrow, MD, PhD, MPH
- Mark Huang, MD
- John Lesher, MD (Chair, Low-Back Pain Pilot)
- Alan Novick, MD (Chair, Ischemic Stroke Pilot)
- James Sliwa, DO
Update on AAPM&R COVID-19 Research Opportunities
AAPM&R recently facilitated conversations on COVID-19 research opportunities for PM&R with a voluntary research-focused work group. During these conversations, two areas of COVID research interests arose: telehealth and analysis of data currently collected in the Inpatient Rehabilitation Facility (IRF) setting and retroactively comparing it with data collected prior to the Public Health Emergency (PHE). Both the 3-Hour and 60% Rules that IRFs must comply with have been suspended during the PHE. This group hopes to learn their effectiveness by analyzing pre- and post-COVID-19 data.
The work group decided to pursue the research idea to answer clinical questions on patients in IRFs using the standard Uniform Data System for Medical Rehabilitation (UDSMR) data that many IRFs are already collecting. In addition, they want to supplement that data with other sources (i.e., information on shelter in place orders by state/city/region, etc.). The work group recommended institutions that are model systems of care to be part of this research opportunity because their commitment to collecting sound data is already confirmed. Furthermore, the work group came to the decision that the Academy’s Clinical Data Registry serving as the hub for this data collection effort is ideal. This will help to avoid any one institution needing to be the hub and providing an opportunity for future research collaboration opportunities. Each interested institution is now working through the details of participating in this collective effort through the Academy.
The telehealth idea is being pursued by many members in their own institutions. The Academy is also planning a telehealth practice collaborative where members will be invited to participate in a learning community by sharing their practice data and using the de-identified aggregate data to identify common challenges of successful practices. More details on this opportunity will be announced soon.
If you are interested in either of these opportunities, please reach out to email@example.com.