Patient-Reported Outcome Measures are increasingly being utilized to evaluate success of clinical care. Many physiatrist stakeholders find benefit in capturing this patient perspective to best provide a full picture of rehabilitation care. Recognizing this, AAPM&R has made a commitment to facilitating capture of this patient reported data through its registry platform. AAPM&R’s Registry will provide data that is actionable to physiatrists in their journey to improve the lives of their patients. Success of the Registry will come from harnessing traditional Electronic Medical Record data with Patient Reported Outcomes (PRO) data.
PRO Assessments are a set of questions that are filled out directly by a patient or a proxy to inform both clinicians and the patients themselves of pain, quality-of-life, goals and additional data points. As patients report on these data points over time, clinicians can assess how they are improving the health of patients overall. AAPM&R’s Registry, governed by an Academy-led Steering Committee, is using PROMIS®-29 as the core PRO for the Registry.
PROMIS®-29 is a global tool that can be used across clinical diagnoses and settings. The survey is comprised of 29 questions over 8 different domains:
- Physical Function
- Sleep Disturbance
- Ability to Participate in Social Roles and Activities
- Pain Interference
- Pain Intensity